WHY THIS PROGRAM IS ESSENTIAL

 

1. Vulnerability During Transition

• Adolescents with SCD often lose access to familiar, coordinated care.
• Adult care systems are rarely equipped with the same level of specialization and psychosocial support found in pediatric programs.
• Studies show that morbidity and mortality increase significantly during the transition period.

2. Medical Complications Increase

• Without proper follow-up, complications like pain crises, organ damage, and hospital readmissions spike.
• Young adults may stop engaging in care altogether due to fear, mistrust, or lack of support.

3. Psychosocial Impact

• Mental health challenges, anxiety, stigma, and the stress of new responsibilities can overwhelm patients during this shift.
• Many feel unprepared to advocate for themselves or navigate the adult care system.

4. Health Equity

• Black and Brown communities, who are disproportionately affected by SCD, often face systemic barriers in healthcare access.
• A well-designed transition program supports health equity by addressing disparities in continuity and quality of care.